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Understanding patient outcomes to develop a multimorbidity adapted patient-reported outcomes measure: a qualitative description of patient and provider perspectives

Sasseville Maxime, Chouinard Maud-Christine et Fortin Martin. (2021). Understanding patient outcomes to develop a multimorbidity adapted patient-reported outcomes measure: a qualitative description of patient and provider perspectives. Health and Quality of Life Outcomes, 19, (e43), p. 1-8.

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URL officielle: http://dx.doi.org/doi:10.1186/s12955-021-01689-w

Résumé

Background : Multimorbidity is a complex health situation that requires interventions tailored to patient needs; the outcomes of such interventions are difficult to evaluate. The purpose of this study was to describe the outcomes of patient-centred interventions for people with multimorbidity from the patients’ and healthcare providers’ perspectives.

Methods : This study followed a qualitative descriptive design. Nine patients with multimorbidity and 18 healthcare professionals (nurses, general practitioners, nutritionists, and physical and respiratory therapists), participating in a multimorbidity-adapted intervention in primary care were recruited. Data were collected using semi-structured interviews with 12 open-ended questions. Triangulation of disciplines among interviewers, research team debriefing, data saturation assessment and iterative data collection and analysis ensured a rigorous research process.

Results : Outcome constructs described by participants covered a wide range of themes and were grouped into seven outcome domains: Health Management, Physical Health, Functional Status, Psychosocial Health, Health-related Behaviours, General Health and Health Services. The description of constructs by stakeholders provides valuable insight on how outcomes are experienced and worded by patients.

Conclusion : Participants described a wide range of outcome constructs, which were relevant to and observable by patients and were in line with the clinical reality. The description provides a portrait of multimorbidity-adapted intervention outcomes that are significant for the selection and development of clinical research outcome measures.

Type de document:Article publié dans une revue avec comité d'évaluation
ISSN:1477-7525
Volume:19
Numéro:e43
Pages:p. 1-8
Version évaluée par les pairs:Oui
Date:2021
Identifiant unique:10.1186/s12955-021-01689-w
Sujets:Sciences de la santé
Sciences de la santé > Sciences infirmières
Sciences de la santé > Sciences médicales
Département, module, service et unité de recherche:Départements et modules > Département des sciences de la santé > Module des sciences infirmières
Mots-clés:chronic diseases, qualitative description, multimorbidity, patient-centred care, patient-reported outcomes, self-management, maladies chroniques, description qualitative, multimorbidité, soins centrés sur le patient, résultats rapportés par le patient, auto-gestion, autosoins
Déposé le:29 mars 2021 17:55
Dernière modification:29 mars 2021 17:55
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